Treatment Options - Region IX Overview
Region IX is part of a nationwide network of federally designated Hemophilia Treatment Centers established to promote comprehensive hemophilia care and to prevent hemophilia complications. It is supported by the Federal Maternal and Child Health Bureau (MCHB) and Centers for Disease Control and Prevention (CDC).
Comprehensive care teams at these centers include hematologists, orthopedists, nurses, social workers and physical therapists. For HIV and hepatitis, other disciplines are consulted, including infectious diseases, immunology, gastroenterology, health education, psychology and psychiatry. Centers coordinate care with dentists, genetic counselors and primary care physicians. This care has preventative, diagnostic, and rehabilitative components. In fact, data from the Centers for Disease Control and Prevention documents that care at hemophilia treatment centers reduces the risk of death by 60% and hospitalizations by 50%.
The Region IX oversees a network of 15 hospital-based Hemophilia Treatment Centers that serve residents of California, Nevada, Hawaii and the U.S. affiliated Pacific Territories. Its staff manages federal grants, maintains databases, administers multi-site research, creates clinical and patient education seminars, monitors health policy, conducts outreach, develops new centers, provides technical assistance, and works with federal, state and local health departments. Currently Region IX centers care for nearly 3,500 active patients with bleeding disorders and 1,000 with inherited clotting disorders.
Genetically Handicapped Persons Program Application
GHPP applications (eligibility and financial):