Family Information Day
Location: Knott’s Berry Farm Hotel
Family Information Day is an annual event held to educate, inform, and support the bleeding disorders community in Southern Calfiornia.
Friday night we are thrilled to present Women’s Bleeding Disorders and Von Willebrands. Join us for a networking reception, dinner and round table group discussions around women’s bleeding disorders and Von Willebrands treatment and support. Open to ALL.
6-7pm Networking/Horse d’ oeuvres
7-8:30pm Dinner and round table discussions
8-9:30am Registration, Breakfast, Youth Registration and Booths Open
9:30-9:45 am Welcome: Michelle Kim, Esq., Execuitve Director, HFSC
9:45-10:45 am “Gene Therapy for Hemophilia A and B: From Promise to Reality”
Steve Pipe, MD, Pediatric Medical Director, Hemophilia and
Coagulation Disorders Program , University of Michigan
10:45-11:45am HTC Panels: Hear from your local hematologists about the latest therapies, latest in pain management, best advice for new families and tips for aging with hemophilia
11:45am-12:15pm 2017 Board of Directors: New Board Member Introduction
2016 Christopher Pitkin Scholarship Winners
2016 Big Stick Summer Award Winner
2016 Volunteer of the Year Award
1:15-2:15pm “We need to Talk: Communication Strategies for a Healthy Relationship”,
Cazandra Campos-McDonald, HFA Families
2:15-4:00pm Booths close, Surveys Distributed, Informal Gatherings
Registration deadline: April 24, 2017. Space is limited and we expect that this event will sell out.
Parking: Parking is FREE at the Knott’s Berry Farm Hotel lot
Translation services for Spanish spakers will be available for the main program
Special Meals: If you have a special dietary consideration, please include it in your registration.
Lodging: Hotel Room Block lodging is available at the Knott’s Berry Farm Hotel for $109/night (plus tax) through April 14, 2017. Ask for the Hemophilia Foundation room block when booking. Limited $100 reimbursement scholarships for lodging are available for members who live 50+ miles away and have a documented financial need. Please contact Cynthia at HFSC by APRIL 7 for more information on lodging scholarships (firstname.lastname@example.org)
Youth Program: Children ages 5-12 have the option to be checked in to our Youth program. If you choose not to register your child or if your child/teen does not qualify for the youth program, please be aware that you are responsible for your child/teen at all times during the program. Teens are expected to attend the general session.