Future Leaders Training and Legislative Days: May 8-10, 2017
January 31, 2017
February 8, 2017

Family Information Day


Location: Knott’s Berry Farm Hotel

Family Information Day is an annual event held to educate, inform, and support the bleeding disorders community in Southern Calfiornia.

Friday night we are thrilled to present Women’s Bleeding Disorders and Von Willebrands.  Join us for a networking reception, dinner and round table group discussions around women’s bleeding disorders and Von Willebrands treatment and support.  Open to ALL.

Friday Night Agenda 5/5/2017

6-7pm         Networking/Horse d’ oeuvres

7-8:30pm     Dinner and round table discussions

Saturday’s Agenda 5/6/2017 (Community members and immediate family ONLY)

8-9:30am               Registration, Breakfast, Youth Registration and Booths Open

9:30-9:45 am        Welcome: Michelle Kim, Esq., Execuitve Director, HFSC

9:45-10:45 am       “Gene Therapy for Hemophilia A and B: From Promise to Reality”

                                      Steve Pipe, MD, Pediatric Medical Director, Hemophilia and

                                    Coagulation Disorders Program , University of Michigan

10:45-11:45am     HTC Panels: Hear from your local hematologists about the latest therapies, latest in pain management, best advice for new families and tips for aging with hemophilia

11:45am-12:15pm  2017 Board of Directors: New Board Member Introduction

                            2016 Christopher Pitkin Scholarship Winners

                            2016 Big Stick Summer Award Winner

                            2016 Volunteer of the Year Award

12:15-1:15pm        Lunch

1:15-2:15pm          “We need to Talk: Communication Strategies for a Healthy Relationship”,

                            Cazandra Campos-McDonald, HFA Families

2:15-4:00pm         Booths close, Surveys Distributed, Informal Gatherings

Participants will receive a ticket to Knott’s Berry Farm at the conclusion of the program. Participants must be checked in to the event no later than 9:30AM in order to receive a ticket.  Tickets will expire at a later date due to the length of the program.  Children 2 and under will not be receiving a ticket as their admission is free to the park.

Event Day Details:

Registration deadline: April 24, 2017.  Space is limited and we expect that this event will sell out.

Parking:  Parking is FREE at the Knott’s Berry Farm Hotel lot

Translation services for Spanish spakers will be available for the main program

Special Meals:  If you have a special dietary consideration, please include it in your registration.

Lodging:  Hotel Room Block lodging is available at the Knott’s Berry Farm Hotel for $109/night (plus tax) through April 14, 2017.  Ask for the Hemophilia Foundation room block when booking.  Limited $100 reimbursement scholarships for lodging are available for members who live 50+ miles away and have a documented financial need.  Please contact Cynthia at HFSC by APRIL 7 for more information on lodging scholarships (

Youth Program:  Children ages 5-12 have the option to be checked in to our Youth program. If you choose not to register your child or if your child/teen does not qualify for the youth program, please be aware that you are responsible for  your child/teen at all times during the program.  Teens are expected to attend the general session.

Thank you Platinum Sponsor: BAYER!


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